I have come to accept that most likely, for the rest of my life, Kinley is going to stress her momma out more than either of our other 2 children! We got some more good news yesterday, but we still have a few concerns as well. First, her echocardiogram came back normal and overall they were very pleased with the improved function of her heart. For this, we are very grateful! Yesterday morning they ran some labs and her potassium was low as well as her hemoglobin and hematocrit. They gave her some potassium through her IV and into her fluids. She also got another blood transfusion. We still do not know for sure if this was the cause of her lower resting heart rate, but it seems to be a little bit higher right now.
Our other concern right now is still her tummy and feeding issues. Overnight, she seemed to do well and did not have many residuals (left over milk in her tummy after feedings); however, she did have some after her 9:00 feed this morning. They re-fed it, and so far she seems to be digesting it. We really, really want her to do better with these feedings and tolerate them well so they can start to increase the amounts and she can grow! Please say lots of prayers that her tummy will "normalize" and she can get back to regular feeds quickly.
They decided to try Cooper off of his nasal cannula today, and while he did okay for a little bit, they decided to put him back on because he was having too many dips in his heart rate and desaturations. The good news is that even on the cannula, he is on the lowest amount of oxygen they can give him, so he is requiring only a tiny bit of support.
Please keep the prayers coming our way, we thank God every day for each of you!
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